About

Welcome to my blog! My name is Norma Cruz. God has put in my heart to share with others my story and the amazing things He is stirring within me in the prophetic. I’m a follower of Jesus, a wife and stay at home mom to two beautiful daughters and a handsome little boy. I also have an angel in heaven who passed away at 4 months from a rare skin disease called Epidermolysis Bullosa. I love photography, painting, writing and reading books as a hobby.

CONNECT WITH ME! If you have any questions feel free to email me. 

Norma021b@gmail.com

Ethan Cruz

Photo Nov 04, 3 21 27 PM

Ethan was born October 31st 2014 and was diagnosed with Herlitz Junctional Epidermolysis Bullosa (H-JEB)  A severe rare genetic skin blistering condition that can also affect internal organs. EB skin is as fragile as the wings of a butterfly. Even gentle skin contact causes devastating wounds. When dressings stick, the skin often comes away too. There are many forms of EB. Ethan had the most severe one. (Herlitz Junctional) Ethan passed away February 27th 2015.

You can know more about Ethan’s Life HERE

16 thoughts on “About

  1. I am so sorry to hear about your son’a condition. My family + I have prayers sent your way. I know The Lord has a plan for that sweet baby boy. God bless you and your family. Keep faith and remember Jeremiah 29:11

    Like

  2. I am praying for your family and your son to be free of any pain , He is in God’s hands although we don’t understaND why these things happen we have to keep trusting him. I pray for peace and strength for your family.

    Like

  3. I am beyond moved by you’d story. May you find faith and strength during this difficult time. Your gorgeous baby boy is a fighter and I will have him in my prayer!

    Like

  4. I have faith that by early next week the doctors will be announcing Ethan’s road to recovery and all plans for his future treatments and care will progress . Nothing ever falls short with the grace of our Lord Savior. I will keep baby Ethan and your entire family in my prayers as I anxiously await the announcement of his miraculous recovery🙏

    Like

  5. Hi. My name is Lori. My husband, his brother, mother and my brother in law son has an EB. My husband get lots of blister the worst in summer.
    You and your family are very strong. I pray for you and your family that your son gonna get better.:-)

    Like

  6. I was completely touched by your strength as a mother & father to stay strong for your beautiful little boy. Baby Ethan is definitely a strong baby boy who has the will to survive. I send prayers out to you & your family.

    Like

  7. My respects for you as a mother to have so much strength my family has gone threw the same experience. & its so heartbreaking to know that you cant do much for our babies . My little brother was in lucile packard childrens hospital at standford and was there for month with a horrible disease called kawasaki and developed really fast that we almost lost him as a 2 year old boy . My prayers for your little angel faith is the key .

    Like

  8. My prayers go out to Ethan !! All these struggles hes going through right now will be over at the end you and your family will have the Victory just hace faith 💙

    Like

  9. My heart goes out to your family
    Your story really touched my heart ,
    your a strong women and I know it must me hard
    But hang in there ,I just recently had a baby and he had
    To go though surgery and that was killing
    So I can imagine the pain your going through
    Keep bring strong like you are

    His is a handsome baby boy you should be proud

    Like

  10. As a mom I can only cry, your journey for the hope of your son recovery must have been so hard. I would cry every second if I saw my son going thru so many machines but you held your head up & you’re an inspiration to all mother out there that even the most precious thing to us such as our kids have past away from us there’s always hope for the future & we must always think that. Even though poor baby Ethan was in so much pain, he is no longer in those circumstances & that Jehovah will resurrect you’re son when he puts all the suffering to an end. (2 Corinthians 1:3,4 3 “Praised be the God and Father of our Lord Jesus Christ, the Father of tender mercies and the God of all comfort, 4 who comforts us in all our trials so that we may be able to comfort others in any sort of trial with the comfort that we receive from God.”) (Revelation 21:4 “4 And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”)
    May Jehovah bless your family.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.