I was able to spend Ethan’s final hours by his side. I road in the ambulance with him on the way home which was about a 3 hour trip. We arrived to our home at 8:20pm I changed his last diaper and it was just him and I. I put him in his crib and he wouldn’t stop smiling at me. He said his last coo’s to me. At 10:40 Ethan stopped breathing and peacefully slowly closed his eyes. We tried getting him to breath by nudging him and asking him to wake up. We called 911 right away, laid him on the floor and began performing CPR as they instructed us. Ethan didn’t move at all, once he arrived to the hospital they intubated him but it was to late, his heart had stopped. Ethan was pronounced dead at 11:45. I’m glad I was able to have Ethan back home to say goodbye. I was able to hang out with him. I was able care for him for his last moments. I feel like my heart is missing a huge important peace to my happiness. I will never forget my little angel. I will see him again! Our little girl Lilian will grow up seeing Ethan’s pictures all over the house. Ethan will never be forgotten. I love you so much. I wake up every morning thinking its just a dream & you are still here with us. I go to sleep thinking of you, bawling my eyes out. I’m just glad you are no longer in pain. It was just to much for you Ethan. This is Ethan’s last photo I took of him alive. You can barely see his little face. #iheartethan #findacure #EB
Norma Cruz(mom)
Norma Cruz 
I am so sorry for your loss. I started following you a few weeks ago and Ethan touched my heart. He’s a beautiful little angel.
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My heart is very heavy for your family I have been following his story for a while. I am praying it gets easier for you. Just remember he is there guarding you all. Prayers and hugs the Nehm family.
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my condolences to you and your family. Stay strong mommy for your family and your little one. Sending my prayers 🙏🙏
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All little Ethan knew in life was unconditional love. No more pain baby boy. May you rest peacefully and watch over your parents and sister 💙
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Mis mas sentidas condolencias para ti y tu familia el Está en un lugar muy hermoso el es un ángel que dios lo tenga en su reino 👼👼
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Our condolences to your family! Ethan was a strong and brave fighter!! God gained a beautiful angel, who is now watching over his beautiful family. His at peace no longer in pain! We wish and pray to God to send you guys the strength needed for this pain you guys have! You guys will always be in our prayers!! You both are great parents to both babies! Everyone admires you both! Praying for you beautiful family!
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I started following you a while ago too. You are so strong and may god bless you and your family. My heart hurts for you. I can’t stop thinking about this- When I saw the news feed, I started to cry…I can’t feel your pain, I have 3 kids of my own. This has made my heart ache. Sending you a HUG
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This brought me to tears, I lived through a similar experience 3 yrs ago. Just ready about your last moments with your son made me relive mind. I know for a fact that they are both in a better place. Watching over us, its hard to let go and continue living. But only time will heal your wound. We both will be reunited with ours sons once again. My sincerest condolences, I loved your son as if he were mind since he reminded me of my own. Rest in peace lil Angels.
– An Angel, in the Book of Life, wrote down our babies births, and whispered as she closed the book, “Too beautiful for Earth”
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I’m still in shock. I was so happy for you guys to be able to bring him home. Rip Ethan. His story definitely touched my heart. I will keep your family in my prayers! 💙🙏
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I’m sorry for what happen to Ethan his story really touched my heart as a mother I know the pain you are feeling right now but only god knows why he puts ur through this you both were very strong to keep going and I admired you both from the bottom of my heart I’m sorry for Ethan RIP In paradise angel…
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Im still in awe about his passing. I’ve been praying for baby Ethan to get better, and was so happy on Friday when he was able to go home. My heart broke on Saturday, when I learned of his passing. God removed him from thia world so he would no longer be in pain. He is resting in peace, free of pain in paradise. Fly high sweet little angel. You captured so many hearts in your short time here on earth. We love you.
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I’m so sorry for your loss..Ethan was a beautiful baby boy a fighter..may god give your family the strength to heal Ethan is watching over his family now ❤ Ethan has a special place in my heart
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Rest in peace beautiful! I will never forget you or the conversations I had with your mommy about you! You will always have a place in my heart!
I love you angel!💙💙💙
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I could berly read this! This is so much to me!! Since the first time I started following his story I felt him part of my family. My 2 year old son would see his pictures with me and their would be not one night that he would say “mami lets pray for Ethan” Ethan I am so happy you are no longer suffering, I feel like I have a little angel my first little angel!!!! I love you very much Ethan you have changed my life!!!!
Blanca Minjarez
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I’m so sorry for your loss, Ethan was such a beautiful baby and he impacted many lives in such a positive manner. He is now with our Heavenly Father, with him in paradise. Revelation 21:4 – And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.
But when Jesus saw it, he was indignant and said to them, “Let the children come to me; do not hinder them, for to such belongs the kingdom of God. Truly, I say to you, whoever does not receive the kingdom of God like a child shall not enter it.” And he took them in his arms and blessed them, laying his hands on them. (Mark 10:14-16
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Im so sorry for your lost i been following you and ethen a few weeks ago he touch my heart he was such a beautiful baby n still is but now with some big wings he make me appreciate more my kids dont think you’re alone we’re here im here if you feel like talking to somebody i know nothing we write to you makes you feel good but we’re here with you to support you and your family RIP BABY ETHEN 💙😞 TO BEAUTIFUL FOR EARTH 💙
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Theres no words to express myself at this moment .Ethan became so important to me since they day i found out about himNow his another angel in heaven.Norma am sorry of yoir lost i will keep u in my prayers to make u stronger and your family.I am so heartbroken:'( cant stop thinking of him i always pray god to give him a cure i had hope he woulved..Rip baby Ethan
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i started fallowing your updates on baby Ethan and there was no single day I wouldn’t think of him and your adorable family. You are a strong mother and God chose your family for Ethan. He knew that you would do the impossible to make his time here the best he could have. Your family now has an angel looking over you. Ethan will never be forgotten especially from all who fell in love with him without ever meeting him. I will keep praying for Ethan and your family. God bless and thank you for sharing your angel with all of us.
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The minute i read about his story, i followed it and cried every night with every post. There was so much irony in his story. Ethan was born only 2 days after my son and had a skin condition very similar to one that a family member had just recently passed away from. Not only that, Ethan was the name that i wanted for my son, but instead named him Angel Gabriel in honor of our family member’s name “Gabriela”. My hurt hurts and i cant help, but to cry. The only thing that consoles my heart is knowing that he is no longer suffering. Ethan will forever be remembered. May this little angel’s strength be the inspiration to your new life without him. 😥
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God Bless you all. You both are very strong and loving parents, Baby Ethan was very loved, not only by his family, but by all of us who followed him. My heart is heavy knowing he passed, he was such a beautiful little baby. But I’m great fun that he is no longer in pain or suffering, Rest in Peace little guy, I will never forget your beautiful little face. 💙
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My prayers go out for you and your family. I been following Ethan story for a while now and trust me it touch my heart really bad. When I find out 2 days ago you were taking him home I was so happy because he was perfectly fine now! But then I go into Instagram yesterday me see that he passed away I started crying I couldn’t believe it! I don’t know your pain but I’m sure it’s the worst because I can feel it in my heart. I have a little girl only 5 months old and I don’t know what would I do if something happened to her. Baby Ethan will be in my heart forever. Rest in paradise little angel. 👼😢😰 stay strong go your family and your little girl but most for yourself.
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I am so sorry for your loss there are no words I can say to heal your pain… I am so sorry you have to go through this pain…. Ethan is sitting in Jesus lap now pain free…..
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R.I.P Ethan you’ll be missed! Although we never met I was used to seeing your cute lil face on my newsfeed. Heaven gained a beautiful Angel. My most sincere condolences to the entire family.
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You are incredibly strong to share this beautiful story with so many. Your beautiful angel whom you so lovingly shared with all of us has touched our hearts beyond comprehension. I found myself praying endlessly since the moment I met Ethan back in December through his page. It has been a difficult process for me to let go of his precious being here with us. And then again I am reminded that our plans are not Gods plans, and I rest assured knowing that not only Gods love was magnified through Ethan’s life here with us, but that this little warrior completed his purpose. He did what many wish they could, he turned hearts back to Jesus, he gave us just one more reason to bend our knees and pray. Ethan I never met you in person but I fell in love with those big brown eyes. I still can’t help but cry at the thought of you. You are so incredibly special to me and my family. You will always have that place in my heart, you unknowingly held. I pray for your mom and dad now. For strength in the years to come. For your sister. You are healed baby, you are in the arms of our Savior . Love you always.
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so so sorry for your loss…he is definitely an “angel with wings” now and he is up in heaven with our father…may God give you peace and “bless” you and your family in this very sad time of your lives…
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..my heart aches with you. I read this over and over and I just can’t believe
He is gone after such a fight. I only pray that GOD continues to give you peace and understanding. In such a short time you’re precious baby made a big impression on my heart… A million thank you’s for sharing his story and your angel with all of us.
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I am sorry for your loss. R.I.P Beautiful baby boy.
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Very truly I tell you, you will weep and mourn while the world rejoices, you wll grieve but your grief will turn to joy! John 16:20
There is no words that will give you any comfort right now, but no doubt that God will be by your side always. He knows you both parents pain, but he didn’t took your little angel away to make you suffer, not at all. He just didn’t want to see and have little Ethan suffering anymore. But I am a firm believer that little Ethan was send to your family and to this world to teach us something. Personally I learned so much from him, that little tinny, lovely boy helped me understand better that life is a gift as and that we should not complain for simple, non sense things in life. He was a little soldier, he remained strong and didnt give up that easy. He always going to be in our hearts. (Well, at least mine). Time and God will help your family to heal the wound. Your little princess still need those strong, wise parents you both are. God may give you the strength and wisdom during this difficult times. You both were a GREAT parents to Ethan, you see, he couldn’t have been to this world to a better home and parents than you both. That’s a blessing 💙
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Little Ethan you have touched many lives for the better. We prayed for you to be healed and maybe not the way we would have wanted it to be but today you are healed. Now you know what it is to live with no pain. God called you home and you have because a beautiful angel. We will keep your parents and sister in our prayers. Rest in peace beautiful angel. May God give your family strength in this difficult time. #iheartethan
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There is no words to ease your pain, all I can say is my condolences to you and you family. I’m so sorry baby Ethan had to go through this . he was a sweet Angel. I started following baby Ethan a while back. He was a beautiful baby. As a mother I can only imagine your heart ache. You and your husband and daughter will be in my prayers daily.
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I’m so sad …. Rest in peace beautiful baby …. With all my love
Virginie FRANCE
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As soon as i saw you post on Facebook i broke down into tears i can’t imagine how you feel it makes everyo everyone sad but he’s in a much better placplace. He’s no longer in pain he will be watching you and taking care of all of you. Ethan isnt gone your just not able to see him. He will always be with you. My prayers go out to you and your family.
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R.I.P. Ethan… He truly stole my heart away when I first heard of his story on YouTube… He was a strong little guy… And fought hard… He is in a better place now… He has gained his angel wings and will always be around mom, dad, & sister. May he rest in peace and may you find some resignation in your hearts… 🙏💐👼👑💗
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This was Ethans plan the whole time, do well enough to come home too his mama & daddy. To get away from all the doctors & nurses and have 1 on 1 time with his family who ALWAYS stood by his side..To say his last coo’s to you& give you his last smiles which im sure meant ” i love you & thank you ” Now ethan the little soldier he is will always be on mamas,sissys,&daddys side. Ethan is literally such an inspiration no matter how young he was & the fight that you all put up will forever inspire me for anything that comes at me…. I AM SO SORRY that you lost your precious baby boy. but just always remember now ethan is healed and with god spreading his angel wings wide over you & your family. You gained one of the worlds most precious angels. I’ll pray for you and your family everyday. ❤
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my condolences to you and your family God bless you and your family I have followed your story since I saw him he is an angel and I too have tears in my eyes you guys are really strong and admire the strength you had to go through this along with eathan he was a strong brave little soldier 👼
Stay strong God had a different purpose for this little one to teach us all to be thankful and greatful for being healthy and to learn to cherish the moments you have I’m so sorry he had to go through this but I know he is no longer in pain and is resting. I also wanted to say thank you for sharing your story it has taught me a lot I will be praying for your family🙏
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As a new mother i cant fathom what your going through but following your story with Ethan he had a place in my heart reading his last story of him smiling brought tears to my eyes and eventho i prayed for a miracle i dont loose faith that one day theyre may be a cure for this horrible disease god bless you and your family
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Omg!!! As a mother reading Ethan last minute of life make me cry so much… Ohh baby boy you tried so hard you will always be a Hero , i know you are in a better place now free of pain… May god always bless u chiquito 🙏🙏
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Im.complelty.choked.with.this.news.im.so.sorry.for.
Ure.loss.ethan.was.a.beautiful.angel.im.so.
Hurt.because.This.is.so.unfair.but.hes.no.longer.in.pain.witch.makes.me.feel.a.little. better. Stay. Strong. Mama. You. Stay. In. My. Prayers
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My heart goes out to you and your family. Ethan was one of the most beautiful babies I’ve ever seen God needed that beauty in Heaven, so He called him home!
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I just started following your story 2days ago, but oh my how your beautiful baby has touched my heart. I could barely read your post, I have 4 kids the youngest a month older than Ethan. I can’t even imagine what your family is going through. But I know that God never abandons us. He gives us the strength when it seems like we can’t bare any more. And gives us peace while going through the toughest situations.
I am praying that you feel his peace at this difficult time. I love your baby so much, for his strength and joy he always had. In every picture he had such joy in his eyes. And I could see how much love he gave you in his short life.
Rip Ethan!!!
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I am so sorry for your loss, I honestly can feel your pain this little angel made me cry. It’s so sad to know that he’s no longer here but he will no longer be in pain, he’s now a little angel watching over you guys and loves you cause he knows you guys did everything you guys could to have him there with you. May he rest in place ❤️👼
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I’m sorry for your lost. God be with you and your family on this hard situation. Ethan is in a BETTER place, he is with God, he will no longer suffer. He will always be watching over you, his sister and your husband. And day you and your family will see him again. God will give you (guys) the peace you will need. God bless you and your family. 🙏🙏👼👼
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Have been praying for little Ethan since i first read your story on FB. This little guy touched our lives and hearts. We felt just a small part of his pain and cried tears as we read your posts. Wanted you to know that you and your family will remain in our prayers for comfort and God’s presence in this journey.
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Norma, my Prayers go out to You and your Family… and yes Baby Ethan is in a better place now with no pain what so ever… He is with our God Almighty… and one day You’ll be together again… I Thank you for all your Posts… it was my pleasure to have known and Loved Him in His short time here…. Larry
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Im truly sorry for your family’s loss. Just know that you are not alone during this difficult time. There is a God that hears our cries. I pray that He may give you peace and comfort during this time.
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Sorry for your loss, My heart was touched by Ethan I followed you on IG. RIP little Angel.
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I am so sorry for your incredible loss. I pray that your unconditional love and undying faith will bring you some sort of peace in the coming days and weeks. You will see your beloved Ethan again. Until then, you grieve. And you will find comfort in your family. But there will always be someone missing. But he is your guardian angel now. He is with you. You will see.
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I started following you around November when you guys had gotten his diagnosis, Ethan was a week younger than my son so it is truly heartbreaking that you guys are going through this. As a mom I cannot imagine your grief. May God bless your hearts to be strong enough to get through this trying time in your lives. I know that Ethan is back with our Father in Heaven and you will see him again someday.
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ethan , mi hermoso amigito siempre vas a vivir en el corazon de tus padres, hermana, familiares , mio y el de mi esposa…. desde que te conoci diste paz a mi vida, .. fuiste mi heroe.. dejaste un gran vacio en este mundo .. pero mi consuelo , es que aora ya no sufres.. ahora todo es felicidad para ti y desde donde estes, cuida de tus familia . para mi eres un verdadero angel y siempre vas a estar en mi corazon.. nunca te olvidare mi heroe y amigo ..
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Hey little one I’m glad to hear you are in no more pain its very sad to know that you’re gone may you rest in paradise little man❤😞 so young & such a big heroe to so many people my prays to the family of Ethan’s family🙏 you are in a better place now!!!😊❤ watch over your mommy & daddy & your little sister as well🙏🙏🙏 rest in paradise little man💘🙏🙏
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Lo siento mucho ! mi corazón esta destrozado !!!! no hay palabras para calmar este dolor y esta perdida de este angelito … el ahora es un angelito y va cuidar de ustedes. Espero y encuentren pronto resignación . 😦
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