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Category: Ethan
Coping With A Loss Of A Child | My Story
Losing someone you love can make you feel stuck in a spiral of grief. It can be so hard to move forward. I've been there. When we lose a child, spouse, sibling or parent, our grief can be particularly intense. We all react and cope with grief differently. There was a time when I would [...]
Spreading Awareness for Epidermolysis Bullosa
My little handsome boy would have been turning 4 and I sit here today, wondering what life would be like to have Ethan here enjoying our company. Would he be running around playing with big sister or would he be making a mess with all his toys. When I think back when he was here, [...]
Happy 2nd birthday Ethan
Ethan Is Safe And Healed
When I was in the ambulance with Ethan, I remember asking God out loud. "I think is time for you to heal Ethan." And he did. Ethan is now healed! And he is safe. He might have suffered on earth but now he is safe in heaven for eternity with no more pain. Ethan is [...]
Ethan’s Last Moments
I was able to spend Ethan's final hours by his side. I road in the ambulance with him on the way home which was about a 3 hour trip. We arrived to our home at 8:20pm I changed his last diaper and it was just him and I. I put him in his crib and he wouldn't [...]
Ethan’s Life
Ethan was born on October 31st 2014. He had painful wounds on his buttocks and had only 4 finger nails that fell off in the few days shortly after, along with the set on his toes. He began struggling to breath his second week post birth with his chest retracting to move air through his [...]
Reevaluating Strength
Ethan's strength continues to amaze us. He has survived and is healing despite the expectations of all of his doctors. It doesn't make sense medically. One of his doctors believed that if he were to be intubated he wouldn't survive more than a day because of the extra trauma to his compromised trachea. Ethan has [...]
48 hours of Success (3 months)
Ethan is 3 months old today and we are very happy to see him healing. The past 48 hour have been all around medically successful. Ethan was using so much of his energy and calories to breath that it was severely hindering his ability to heal and grow. Ethan's wounds are now healing at an [...]
The Struggle to Survive
Ethan faces complicated circumstances. Five blisters blocking his airway forced us to intubate after he had tired out from struggling to breath. It is a miracle that his lungs and heart are still working after the struggle he has endured the last three days. The medical team is trying everything to secure the tube so [...]
Norma Cruz 